Twins born in Rajasthan are suffering from a rare disease where their skin is like plastic
Rajasthan: Twins suffering from a rare disease were born four days ago in Bikaner, Rajasthan. The skin of both children is like plastic. The hard-core skin is torn like nails. These children are suffering from a rare disease called Harlequin-type ichthyosis. A team of half a dozen doctors including Dr. G.S. Tanwar is engaged in the treatment of the children. With this disease, children are able to live for one and a half years.
Four days ago, twins born in Bikaner, Rajasthan are suffering from a rare disease. The skin of both these children is like plastic. The hardcore skin is torn like nails. The rare disease is known as Harlequin-type ichthyosis. A team of half a dozen doctors including Dr. G.S. Tanwar is engaged in the treatment of the children. With this disease, children are able to live for one and a half years.
Doctors are feeding them milk through a pipe along with vitamin A therapy to moisten the skin of both kids. According to the doctors, this could probably be the country's first case, where twins are born with this rare disease. This disease is found in one child out of five lakh.
The twins were born in a private hospital in Nokha of Bikaner district on November 3. The skin of the twins is very hard, like the light pink color of nails. Cracks in between are deep. After birth, both the children were admitted in critical condition at PBM Hospital in Bikaner.
According to doctors, Harlequin-type ichthyosis disease reaches the child through an autosomal recessive gene. Sometimes people can be carriers of this disease even without having it. For example, if one of the parents has inherited this gene, then one or both of them will be carriers of this disease, that is, even if the parents did not have Harlequin-type ichthyosis in their childhood, the future child may have this disease.
Rajasthan Medical Council (RMC) has canceled the licenses of eight doctors after receiving complaints of getting themselves registered by submitting wrong documents and negligence in treatment. RMC Registrar Dr. Girdhar Goyal said that the licenses of Shubham Gurjar, Indraraj Gurjar, Vijay Saini, Devendra Singh, Matendra Singh Gurjar, Abhishek Kumar, and Sheikh Afir Iqbal have been canceled.
According to the information, all the doctors whose registrations have been canceled had done MBBS from abroad, but they did not pass the local level examination and got themselves registered in RMC by presenting fake documents.
It is pertinent to mention here that recently, around a hundred youths who had passed 12th got themselves registered in connivance with the officials of RMC on the basis of fake certificates of Medical Councils of other states besides Rajasthan. Some of them had also started working in the hospitals.
Apart from forging the documents, these individuals got themselves registered with the RMC on the basis of fake documents. After the matter came into light, the Bhajanlal Sharma government ordered an investigation and many were arrested; now the registration of eight doctors has been canceled.
